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Publicerad: 2021-10-20



47. Årestedt K, Brännström M, Lorraine S E, Strömberg A, Alvariza A.
Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart  failure (nih.gov)
ESC Heart Fail. 2021 Jun;8(3):2202-2209. doi: 10.1002/ehf2.13312. Epub 2021 Mar 22. PMID: 33754461; PMCID: PMC8120384.

46. Melin-Johansson C, Sveen J, Lövgren M, Udo C.
A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study.
Palliat Support Care. 2021 Jun 23:1-6. doi: 10.1017/S1478951521000973. Epub ahead of print. PMID: 34158146.

45. Henoch I, Ekberg-Jansson A, Löfdahl C-G, Strang P.                                                                                Benefits, for patients with late stage chronic obstructive pulmonary disease, of being cared for in specialized  palliative care compared to hospital. A nationwide register study.                                                                            BMC Palliative Care 20.130 (2021). https://doi.org/10.1186/s12904-021-00826-y.

44. Andersson S, Martinsson L, Fürst C J, Brännström M.
End-of-life discussions in residential care homes improves symptom control: a national register study.
BMJ Supportive & Palliative Care Published Online First: 23 June 2021. doi: 10.1136/bmjspcare-2021-002983

43. Martinsson L, Bergström J, Hedman C, Strang P, Lundström S.
Symptoms, symptom relief and support in COVID-19 patients dying in hospitals during the first pandemic wave.
BMC Palliative Care 20,102 (2021). https://doi.org/10.1186/s12904-021-00785-4

42. Carlsson ME, Hjelm K.
Equal palliative care for foreign-born patients: A national quality register study.
Palliative and Supportive Care, 1–8.(2021) https://doi.org/10.1017/S1478951521000110

41. Martinsson, L., Strang, P., Bergström, J. et al.
Dying from COVID-19 in nursing homes-sex differences in symptom occurrence.
BMC Geriatr 21,294 (2021). https://doi.org/10.1186/s12877-021-02228-4


38. Dahlhammar K, Malmström M, Schelin M, Falkenback D, Kristensson J.                                                   
The impact of initial treatment strategy and survival time on quality of end-of-life care among patients with oesophageal and gastric cancer: A population-based cohort study.
PLoS One. 2020 Jun 22;15(6):e0235045. doi: 10.1371/journal.pone.0235045. eCollection 2020.

37. Eljas Ahlberg E, Axelsson B.
End-of-Life care in amyotrophic lateral sclerosis: A comparative registry study.
Acta Neurol Scand. 2020 Nov 3. doi: 10.1111/ane.13370. Epub ahead of print.

36. Martinsson L, Strang P, Bergström J, Lundström S.
Were clinical routines for good end-of-life care maintained in hospitals and nursing homes during the first three months of the outbreak of COVID-19?  A national register study.
J Pain Symptom Manage. 2020  Oct doi: https://doi.org/10.1016/j.jpainsymman.2020.09.043.

35. Martinsson L, Lundström S, Sundelöf J.
Better quality of end-of-life care for persons with advanced dementia in nursing homes compared to hospitals: a Swedish national register study.
BMC Palliative Care (2020) 19:135 https://doi.org/10.1186/s12904-020-00639-5

34. Nilsson J, Axelsson B, Holgersson G, Carlsson T, Berqvist M, Bergström S.
Geographical Differences in Likelihood of Home Death Among Palliative Cancer Patients: A National Population-based Register Study. Anticancer.
Anticancer Res. 2020 Jul;40(7):3897-3903. doi: 10.21873/anticanres.14380.

33. Strang P, Bergström J, Lundström S.
Symptom Relief Is  Possible in Elderly Dying COVID-19 Patients: A National Register Study.
J Palliat Med. 2020 DOI: 10.1089/jpm.2020.0249

32. Strang P, Bergström J,  Martinsson L,  Lundström S.
Dying from Covid-19: Loneliness, end-of-life discussions and support for patients and their families in nursing homes and hospitals. A national register study.
J Pain Symptom Manage. 2020 Jul 25:S0885-3924(20)30630-8. doi: 10.1016/j.jpainsymman.2020.07.020. Online ahead of print.

31. K Lindemann, L Martinsson, S Kaasa, D Lindquist.
Elderly gynaecological cancer patients at risk for poor end of life care: a population-based study from the Swedish Register of Palliative Care.
Acta Oncol. 2020 Apr 2;1-8. doi: 10.1080/0284186X.2020.1744717.


30. Ozanne A, Sawatzky R, Håkansson C, Alvariza A, Fürst C J, Årestedt K, Öhlén J.
Symptom relief during last week of life in neurological diseases.                                                           
Brain Behav. 2019 Aug;9(8):e01348. doi: 10.1002/brb3.1348. Epub 2019 Jul 9

29. Fürst P, Lundström S, Klepstad P, Strang P.
The Use of Low-Dose Methadone as Add - On to Regular Opioid Therapy in Cancer-Related Pain at End of Life: A National Swedish Survey in Specialized Palliative Care.
J Palliat Med. 2019 Aug. DOI: 10.1089/jpm.2019.0253.

28. Lövgren, M, Melin-Johansson, C, Udo, C. & Sveen, J.
Telling the truth to dying children—End‐of‐life Communication with families.
Acta Pediatrica, DOI: 10.1111/apa.14935

27. Klint Å, Bondesson E, Rasmussen B H, Fürst C J, Schelin M EC
Dying With Unrelieved Pain -Prescription of Opioids Is Not Enough.
J Pain Symptom Management, doi.org/10.1016/j.jpainsymman.2019.07.006

26. Elmstedt S, Mogensen H, Hallmans D-E, Tavelin B, Lundström S, Lindskog M.
Cancer patients hospitalised in the last week of life risk insufficient care quality – a population-based study from the Swedish Register of Palliative Care.
Acta Oncologica 2019 58(4):432-38

25. Ingela Henoch, Peter Strang, Claes-Göran Löfdahl & Ann Ekberg-Jansson
Equal palliative care for patients with COPD? A nationwide register study.
Upsala Journal of Medical Sciences, DOI: 10.1080/03009734.2019.1586803


24. Schelin ME, Sallerfors B, Rasmussen BH, Fürst CJ.
Quality of care for the dying across different levels of palliative care development: A population-based cohort study.
Palliat Med. 2018 Sep 19:269216318801251. doi: 10.1177/0269216318801251.

23. Martinsson L, Lundström S, Sundelöf J.
Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study. 
PLoS One. 2018 Jul 30;13(7):e0201051. doi: 10.1371/journal.pone.0201051. eCollection 2018.

22. Andersson S, Årestedt K, Lindqvist O, Fürst CJ, Brännström M.
Factors Associated With Symptom Relief in End-of-Life Care in Residential Care Homes: A National Register-Based Study.
J Pain Symptom Manage 2018 Jan 2. pii: S0885-3924(17)31285-X. doi: 10.1016/j.jpainsymman.2017.12.489.


21. Martinsson L, Heedman P-A, Lundström S, Axelsson B.
Improved data validity in the Swedish Register of Palliative Care.
PLoS ONE 12(10):e0186804 · October 2017

20. Årestedt K, Alvariza A, Boman K et al.
Symptom Relief and Palliative Care during the Last Week of Life among Patients with Heart Failure: A National Register Study.

J Palliat Med. 2017 Oct 19. doi: 10.1089/jpm.2017.0125.

19. Asplund K, Lundström S, Stegmayr B.
End of life after stroke: A nationwide study of 42502 deaths occurring within a year after stroke.
European Stroke Journal 2017 Oct https://doi.org/10.1177/2396987317736202

18. Axelsson L, Alvariza A, Lindberg J et al.
Unmet palliative care needs among patients with end-stage kidney disease: a national registry study about the last week of life.

J Pain Symptom Manage. 2017 Sep 20. pii: S0885-3924(17)30494-3. doi: 10.1016/j.jpainsymman.2017.09.015.

17. Smedbäck J, Öhlén J, Årestedt K et al. .
Palliativa care during the final week of life of older people in nursing homes: A register-based study.

Palliat Support Care. 2017 Aug;15(4):417-424.

16. Öhlén J, Russell L, Håkanson C et al.
Variations in Care Quality Outcomes of Dying People: Latent Class Analysis of an Adult National Register Population.

J Pain Symptom Manage. 2017 Jan;53(1):13-24.


15. Carlsson M. Gunningberg L.
Predictors for Development of Pressure Ulcer in End-of-Life Care: A National Quality Register Study.
J Palliat Med. 2017 Jan;20(1):53-58. Epub 2016 Sep 22

14. Eriksson H, Milberg A, Hjelm K, Friedrichsen M.
End of Life Care for Patients Dying of Stroke: A Comparative Registry Study of Stroke and Cancer
PLoS ONE 2016, 11(2): e0147694. doi:10.1371/journal.pone.0147694

13. Ahmadi Z, Wysham N, Lundström S, Janson C, Currow D, Ekström M.
End of life care in oxygen-dependent ILD compared to lung cancer: a national population-based study.
Thorax 2016;0:1–7. doi:10.1136/thoraxjnl-2015-207439



12. Ahmadi Z, Lundström S, Janson C, Strang P, Emtner M, Currow D, Ekström M.
End of Life care in Oxygen-Dependent COPD and cancer: a National Population Based Study.
Eur Respir J 2015 Oct;46(4):1190-3

11. Lindskog M, Tavelin B, Lundström S.
Old age as risk indicator for poor end-of-life care quality – A population-based study of cancer deaths from the Swedish Register of Palliative Care.
Eur J Cancer 2015 Jul;51(10):1331-9


10. Martinsson L, Heedman P-A, Eriksson M, Tavelin B, Axelsson B.
Increasing the number of patients receiving information about transition to end-of-life care: the effect of a half-day physician and nurse training.
BMJ Support Palliat Care 2015;0:1-7


9. Nilsson M, Tavelin B, Axelsson B.
A study of patients not registered in the Swedish cancer register but reported to the Swedish register of palliative care 2009 as deceased due to cancer.
Acta Oncol 2014 Mar;53(3):414-9 Epub August 22, 2013

8. Fritzson A, Tavelin B, Axelsson B.
Association between parenteral fluids and symptoms in hospital end-of-life care: an observational study of 280 patients
BMJ Support Palliat Care published online November 19, 2013


7. Martinsson L, Fürst CJ, Lundström S, Nathanaelsson L, Axelsson B.
Registration in a quality register: a method to improve end-of-life care–a cross-sectional study.
BMJ Open 2012;2(4):e001328

6. Lundström S, Axelsson B, Heedman PA, Fransson G, Furst CJ.
Developing a national quality register in end-of-life care: The Swedish experience.
Palliat Med. 2012 Jun;26(4):313-21. Epub före tryck 2011, jul 7

5. Lindblom AK, Bäck-Pettersson S, Berggren I.
A quality registers impact on community nurses’ in end-of-life care – a grounded theory study.
J of Nursing Management, 2012, 20, 206–214


4. Lundqvist G, Rasmussen BH, Axelsson B.
Information of imminent death or not – does it make a difference?
J Clin Oncology 2011; Oct 10, 29 (29): 3927-31

3. Brännström M, Hägglund L, Fürst CJ, Boman K.
Unequal care for dying patients in Sweden – A comparative registry study of deaths from heart disease and cancer.
Eur J Cardiovascular Nurs 2011; July 15, Epub före tryck.

2. Martinsson L, Heedman PA, Lundström S, Fransson G, Axelsson B.
Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care.
Acta Oncologica 2011 Jun; 50 (5): 642-7

1. Gholiha A, Fransson G, Fürst Cj, Heedman PA, Lundström S, Axelsson B.
Stora luckor i journaler vid vård i livets slutskede. Journaluppgifter saknas för data inrapporterade till Palliativregistret.
Läkartidningen 2011, Apr 20-Maj3; 108 (16-17):918-21