Publikationslista

2024

65. Ozanne, A, Öhlén J, Nyblom S, Jakola A.S,  Smits A, Larsdotter C.
Disparities in end-of-life care and place of death in people with malignant brain tumors–a Swedish registry study.
Neuro-Oncology Practice.
https://doi.org/10.1093/nop/npae113

64. Larsdotter C, Nyblom S, Gyllensten H, Fürst CJ, Ozanne A, Hedman R, Nilsson S, Öhlén J. 
Trends in the place of death in Sweden from 2013 to 2019 – disclosing prerequisites for palliative care. Palliative Care and Social Practice..
Palliative Care and Social Practice, 18, 26323524241238232.
https://doi.org/10.1177/26323524241238232

63. Nilsson S, Öhlén J, Nyblom S, Ozanne A, Stenmarker M, Larsdotter C.
Place of death among children from 0 to 17 years of age: A population‐based study from Sweden. 
Acta Paediatr. 2024;113:2155-2163
https://doi.org/10.1111/apa.17308

62. Martinsson L, Brännström M, Andersson S.
Symptom assessment in the dying: family members versus
healthcare professionals
BMJ Support Palliat Care. 2024 Nov 20;14(4):428-433. doi: 10.1136/spcare-2023-004382. PMID: 37973205 http://spcare.bmj.com.

61. Böling S, Gyllensten H, Engström M, Lundberg E, Berlin J, Öhlén J.
Palliative care consultation in the last week of life and associated factors: a
cross-sectional general population study.
Palliat Care Soc Pract. 2024 Nov 8;18:26323524241293818. doi: 10.1177/26323524241293818. PMID: 39525428
https://doi.org/10.1177/26323524241293818

60. Wall C, Blomberg K, Bergdahl E, Sjölin H, Alm F.
Patients near death receiving specialized palliative home care being transferred to inpatient care – a registry study.
Wall et al. BMC Palliative Care (2024) 23:215
https://doi.org/10.1186/s12904-024-01549-6

59. Nyblom S, Öhlén J, Larsdotter C, Ozanne A, Fürst CJ, Hedman R.
Registry study of cardiovascular death in Sweden 2013–2019: Home as place of death and specialized palliative care are the preserve of a minority.
International Journal of Cardiology Cardiovascular Risk and Prevention,
Volume 23, 2024, 200328
https://doi.org/10.1016/j.ijcrp.2024.200328.

58. Lindskog M, Mogensen H, Tavelin B, Eknert J, Lundström S, Strang P.
Fluid therapy is associated with lower care quality and higher symptom burden during last days of life of patients with cancer – a population-based register study
https://doi.org/10.1186/s12904-024-01504-5

57. Hedman C, Fürst P, Strang P, Schelin MEC, Lundström S, Martinsson L.
Pain prevalence and pain relief in end-of-life care – a national registry study
Published: 15 July 2024
https://bmcpalliatcare.biomedcentral.com

56. Martinsson L, Strang P, Lundström S, Hedman C.
Parenteral hydration in dying patients with cancer – a national registry study.
Journal of Pain and Symptom Management.
https://doi.org/10.1016/j.jpainsymman.2024.01.036

55. Mikaelsson Midlöv E, Lindberg T, Skär L.
Relative's suggestions for improvements in support from health professionals before and after a patient's death in general palliative care at home: A qualitative register study.
Scand J Caring Sci. 2024;00:1–10.
https://doi.org/10.1111/scs.13239

2023

54. Martinsson L, Brännström M, Andersson S.
Symptom assessment in the dying: family members versus healthcare professionals
BMJ Supportive & Palliative Care.
Published Online First: 16 November 2023. doi: 10.1136/spcare-2023-004382

53. Mikaelsson Midlöv E, Lindberg T, Sterner T, Skär L.
Support given by health professionals before and after a patient’s death to relatives involved in
general palliative care at home in Sweden: Findings from the Swedish Register of Palliative Care
Palliative and Supportive Care.
https://doi.org/10.1017/S1478951523001323 

52. Höijer C, Johnson M.
Deactivation of implantable defibrillators at the end of life - A register-based study of ICD-deactivation at home and the impact of palliative care
International Journal of Cardiology 386 (2023) 91–94
https://doi.org/10.1016/j.ijcard.2023.05.046

51. Hedman C, Strang P, Lundström S, Martinsson L.
Symptom Management and Support in Dying Patients with Cancer and Coronavirus Disease-19—A Register-Based Study.
Journal of Palliative Care. 2023;0(0).

2022

50. Tranberg M, Jacobsen J, Fürst CJ, Engellau J, Schelin M.
Patterns of Communication About Serious Illness in the Years, Months, and Days before Death
2022; Published by Mary Ann Liebert, Inc.

49. Sennfält S, Kläppe U, Thams S, Samuelsson K, Press R, Fang F, Ingre C.
Dying from ALS in Sweden: clinical status, setting, and symptoms.
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2022; 0: 1–9 DOI:10.1080/21678421.2022.2096411 

48. Axelsson B.
The Challenge: Equal Availability to Palliative Care According to Individual Need Regardless of Age, Diagnosis, Geographical Location, and Care Level
Int. J. Environ. Res. Public Health 2022, 19(7)EISSN 1660-4601, Published by MDPI

2021 

47. Årestedt K, Brännström M, Lorraine S E, Strömberg A, Alvariza A.
Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart  failure (nih.gov)
ESC Heart Fail. 2021 Jun;8(3):2202-2209. doi: 10.1002/ehf2.13312. Epub 2021 Mar 22. PMID: 33754461; PMCID: PMC8120384.

46. Melin-Johansson C, Sveen J, Lövgren M, Udo C.
A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study.
Palliat Support Care. 2021 Jun 23:1-6. doi: 10.1017/S1478951521000973. Epub ahead of print. PMID: 34158146.

45. Henoch I, Ekberg-Jansson A, Löfdahl C-G, Strang P.                                                                              Benefits, for patients with late stage chronic obstructive pulmonary disease, of being cared for in specialized  palliative care compared to hospital. A nationwide register study.                                                                   BMC Palliative Care 20.130 (2021). https://doi.org/10.1186/s12904-021-00826-y.

44. Andersson S, Martinsson L, Fürst C J, Brännström M.
End-of-life discussions in residential care homes improves symptom control: a national register study.
BMJ Supportive & Palliative Care Published Online First: 23 June 2021. doi: 10.1136/bmjspcare-2021-002983

43. Martinsson L, Bergström J, Hedman C, Strang P, Lundström S.
Symptoms, symptom relief and support in COVID-19 patients dying in hospitals during the first pandemic wave.
BMC Palliative Care 20,102 (2021). https://doi.org/10.1186/s12904-021-00785-4

42. Carlsson ME, Hjelm K.
Equal palliative care for foreign-born patients: A national quality register study.
Palliative and Supportive Care, 1–8.(2021) https://doi.org/10.1017/S1478951521000110

41. Martinsson, L., Strang, P., Bergström, J. et al.
Dying from COVID-19 in nursing homes-sex differences in symptom occurrence.
BMC Geriatr 21,294 (2021). https://doi.org/10.1186/s12877-021-02228-4

37. Eljas Ahlberg E, Axelsson B.
End-of-Life care in amyotrophic lateral sclerosis: A comparative registry study.
Acta Neurol Scand. 2020 Nov 3. doi: 10.1111/ane.13370. Epub ahead of print.

36. Martinsson L, Strang P, Bergström J, Lundström S.
Were clinical routines for good end-of-life care maintained in hospitals and nursing homes during the first three months of the outbreak of COVID-19?  A national register study.
J Pain Symptom Manage. 2020  Oct doi: https://doi.org/10.1016/j.jpainsymman.2020.09.043.

35. Martinsson L, Lundström S, Sundelöf J.
Better quality of end-of-life care for persons with advanced dementia in nursing homes compared to hospitals: a Swedish national register study.
BMC Palliative Care (2020) 19:135 https://doi.org/10.1186/s12904-020-00639-5

34. Nilsson J, Axelsson B, Holgersson G, Carlsson T, Berqvist M, Bergström S.
Geographical Differences in Likelihood of Home Death Among Palliative Cancer Patients: A National Population-based Register Study. Anticancer.
Anticancer Res. 2020 Jul;40(7):3897-3903. doi: 10.21873/anticanres.14380.

33. Strang P, Bergström J, Lundström S.
Symptom Relief Is  Possible in Elderly Dying COVID-19 Patients: A National Register Study.
J Palliat Med. 2020 DOI: 10.1089/jpm.2020.0249

32. Strang P, Bergström J,  Martinsson L,  Lundström S.
Dying from Covid-19: Loneliness, end-of-life discussions and support for patients and their families in nursing homes and hospitals. A national register study.
J Pain Symptom Manage. 2020 Jul 25:S0885-3924(20)30630-8. doi: 10.1016/j.jpainsymman.2020.07.020. Online ahead of print.

31. K Lindemann, L Martinsson, S Kaasa, D Lindquist.
Elderly gynaecological cancer patients at risk for poor end of life care: a population-based study from the Swedish Register of Palliative Care.
Acta Oncol. 2020 Apr 2;1-8. doi: 10.1080/0284186X.2020.1744717.

2019

30. Ozanne A, Sawatzky R, Håkansson C, Alvariza A, Fürst C J, Årestedt K, Öhlén J.
Symptom relief during last week of life in neurological diseases.                                                           
Brain Behav. 2019 Aug;9(8):e01348. doi: 10.1002/brb3.1348. Epub 2019 Jul 9

29. Fürst P, Lundström S, Klepstad P, Strang P.
The Use of Low-Dose Methadone as Add - On to Regular Opioid Therapy in Cancer-Related Pain at End of Life: A National Swedish Survey in Specialized Palliative Care.
J Palliat Med. 2019 Aug. DOI: 10.1089/jpm.2019.0253.

28. Lövgren, M, Melin-Johansson, C, Udo, C. & Sveen, J.
Telling the truth to dying children—End‐of‐life Communication with families.
Acta Pediatrica, DOI: 10.1111/apa.14935

27. Klint Å, Bondesson E, Rasmussen B H, Fürst C J, Schelin M EC
Dying With Unrelieved Pain -Prescription of Opioids Is Not Enough.
J Pain Symptom Management, doi.org/10.1016/j.jpainsymman.2019.07.006

26. Elmstedt S, Mogensen H, Hallmans D-E, Tavelin B, Lundström S, Lindskog M.
Cancer patients hospitalised in the last week of life risk insufficient care quality – a population-based study from the Swedish Register of Palliative Care.
Acta Oncologica 2019 58(4):432-38

25. Ingela Henoch, Peter Strang, Claes-Göran Löfdahl & Ann Ekberg-Jansson
Equal palliative care for patients with COPD? A nationwide register study.
Upsala Journal of Medical Sciences, DOI: 10.1080/03009734.2019.1586803

2018

24. Schelin ME, Sallerfors B, Rasmussen BH, Fürst CJ.
Quality of care for the dying across different levels of palliative care development: A population-based cohort study.
Palliat Med. 2018 Sep 19:269216318801251. doi: 10.1177/0269216318801251.

23. Martinsson L, Lundström S, Sundelöf J.
Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study. 
PLoS One. 2018 Jul 30;13(7):e0201051. doi: 10.1371/journal.pone.0201051. eCollection 2018.

22. Andersson S, Årestedt K, Lindqvist O, Fürst CJ, Brännström M.
Factors Associated With Symptom Relief in End-of-Life Care in Residential Care Homes: A National Register-Based Study.
J Pain Symptom Manage. 2018 Jan 2. pii: S0885-3924(17)31285-X. doi: 10.1016/j.jpainsymman.2017.12.489.

2017

21. Martinsson L, Heedman P-A, Lundström S, Axelsson B.
Improved data validity in the Swedish Register of Palliative Care.
PLoS ONE 12(10):e0186804 · October 2017

20. Årestedt K, Alvariza A, Boman K et al.
Symptom Relief and Palliative Care during the Last Week of Life among Patients with Heart Failure: A National Register Study.
J Palliat Med. 2017 Oct 19. doi: 10.1089/jpm.2017.0125.

19. Asplund K, Lundström S, Stegmayr B.
End of life after stroke: A nationwide study of 42502 deaths occurring within a year after stroke.
European Stroke Journal 2017 Oct https://doi.org/10.1177/2396987317736202

18. Axelsson L, Alvariza A, Lindberg J et al.
Unmet palliative care needs among patients with end-stage kidney disease: a national registry study about the last week of life.
J Pain Symptom Manage. 2017 Sep 20. pii: S0885-3924(17)30494-3. doi: 10.1016/j.jpainsymman.2017.09.015.

17. Smedbäck J, Öhlén J, Årestedt K et al. .
Palliativa care during the final week of life of older people in nursing homes: A register-based study.
Palliat Support Care. 2017 Aug;15(4):417-424.

16. Öhlén J, Russell L, Håkanson C et al.
Variations in Care Quality Outcomes of Dying People: Latent Class Analysis of an Adult National Register Population.
J Pain Symptom Manage. 2017 Jan;53(1):13-24.

2016

15. Carlsson M. Gunningberg L.
Predictors for Development of Pressure Ulcer in End-of-Life Care: A National Quality Register Study.
J Palliat Med. 2017 Jan;20(1):53-58. Epub 2016 Sep 22

14. Eriksson H, Milberg A, Hjelm K, Friedrichsen M.
End of Life Care for Patients Dying of Stroke: A Comparative Registry Study of Stroke and Cancer
PLoS ONE 2016, 11(2): e0147694. doi:10.1371/journal.pone.0147694

13. Ahmadi Z, Wysham N, Lundström S, Janson C, Currow D, Ekström M.
End of life care in oxygen-dependent ILD compared to lung cancer: a national population-based study.
Thorax 2016;0:1–7. doi:10.1136/thoraxjnl-2015-207439

 

2015

12. Ahmadi Z, Lundström S, Janson C, Strang P, Emtner M, Currow D, Ekström M.
End of Life care in Oxygen-Dependent COPD and cancer: a National Population Based Study.
Eur Respir J 2015 Oct;46(4):1190-3

11. Lindskog M, Tavelin B, Lundström S.
Old age as risk indicator for poor end-of-life care quality – A population-based study of cancer deaths from the Swedish Register of Palliative Care.
Eur J Cancer 2015 Jul;51(10):1331-9

2014

10. Martinsson L, Heedman P-A, Eriksson M, Tavelin B, Axelsson B.
Increasing the number of patients receiving information about transition to end-of-life care: the effect of a half-day physician and nurse training.
BMJ Support Palliat Care 2015;0:1-7

2013

9. Nilsson M, Tavelin B, Axelsson B.
A study of patients not registered in the Swedish cancer register but reported to the Swedish register of palliative care 2009 as deceased due to cancer.
Acta Oncol 2014 Mar;53(3):414-9 Epub August 22, 2013

8. Fritzson A, Tavelin B, Axelsson B.
Association between parenteral fluids and symptoms in hospital end-of-life care: an observational study of 280 patients
BMJ Support Palliat Care published online November 19, 2013

2012

7. Martinsson L, Fürst CJ, Lundström S, Nathanaelsson L, Axelsson B.
Registration in a quality register: a method to improve end-of-life care–a cross-sectional study.
BMJ Open 2012;2(4):e001328

6. Lundström S, Axelsson B, Heedman PA, Fransson G, Furst CJ.
Developing a national quality register in end-of-life care: The Swedish experience.
Palliat Med. 2012 Jun;26(4):313-21. Epub före tryck 2011, jul 7

5. Lindblom AK, Bäck-Pettersson S, Berggren I.
A quality registers impact on community nurses’ in end-of-life care – a grounded theory study.
J of Nursing Management, 2012, 20, 206–214

2011

4. Lundqvist G, Rasmussen BH, Axelsson B.
Information of imminent death or not – does it make a difference?
J Clin Oncology 2011; Oct 10, 29 (29): 3927-31

3. Brännström M, Hägglund L, Fürst CJ, Boman K.
Unequal care for dying patients in Sweden – A comparative registry study of deaths from heart disease and cancer.
Eur J Cardiovascular Nurs 2011; July 15, Epub före tryck.

2. Martinsson L, Heedman PA, Lundström S, Fransson G, Axelsson B.
Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care.
Acta Oncologica 2011 Jun; 50 (5): 642-7

1. Gholiha A, Fransson G, Fürst Cj, Heedman PA, Lundström S, Axelsson B.
Stora luckor i journaler vid vård i livets slutskede. Journaluppgifter saknas för data inrapporterade till Palliativregistret.
Läkartidningen 2011, Apr 20-Maj3; 108 (16-17):918-21